SUPPORT KATE'S HACKNEY HALF FOR TNA UK


On Sunday 26th September 2021, Kate is running the Hackney Half Marathon for Trigeminal Neuralgia Association UK

all donations through justgiving

Supporting:

TNA UK

Event:

KATE'S STORY

**TW: Mentions of suicide, pain and images of surgery scars. **

Hello everyone,

February 28th is Rare Disease Day, an event first held in 2008 to raise awareness amongst the public and policy decision-makers about rare diseases across the globe. 

And it’s the ideal day on which to raise awareness of Trigeminal Neuralgia (TN), an incredibly painful - and often debilitating - disease which affects the trigeminal nerve between the face and the brain.  It is often described as 'the worst pain known to mankind'. (TNA UK, 2018). 

My most excellent friend Melissa Geczy developed TN three years ago, and I am running the Hackney Half Marathon on Sunday 26th September to raise funds for Trigeminal Neuralgia Association UK - a charity that does vital work to raise awareness of this condition and to continue to offer support to people recently diagnosed with this disease. This service was helpful and reassuring to Melissa when she first received her diagnosis. The officers of the charity (many of whom are themselves sufferers of the condition) give their time voluntarily. The charity receives no Government or corporate funding but relies mostly on donations. 

Trigeminal Neuralgia’s symptoms include episodes of severe, shooting or jabbing pain that may feel like an electric shock, episodes of several attacks lasting days, weeks, months or longer. It’s even, sadly, come to be known as ‘The Suicide Disease’ due to the unbearable pain it causes. If you’d like to find out more, Amanda Young (a 39-year-old fitness instructor in Brooklyn living with Trigeminal Neuralgia) describes what it is like to live with TN in this short film from MSNBC: Living With The World's Most Painful Disease. (hyperlink in the title). 

Melissa has also spoken eloquently and openly about her experiences with TN, including on the BeautyMe podcast with Cherisse Kenion, so please do give her episode a listen here to find out why this is such an important and special cause. 

At the moment, there is no cure for the disease. Some treatments such as brain surgery and other percutaneous procedures can be undertaken, but they have limited effectiveness as a permanent cure. One such operation is microvascular decompression surgery (MVD), which involves opening the skull and exposing the nerve at the base of the brainstem. A tiny sponge is inserted between the compressing vessel and the nerve. This sponge isolates the nerve from the pulsating effect and pressure of the blood vessel. Melissa underwent MVD surgery in August 2019. Many TN sufferers get relief from this, but this was not the case with Melissa. Trigeminal Neuralgia Association UK is working to raise awareness and fund further research into finding a cure for this excruciating disease. 

For more information about Trigeminal Neuralgia, please visit: Trigeminal Neuralgia Association UK’s website: https://www.tna.org.uk/ 

Kelsey Darragh also lives with TN and explains what her life is like with a chronic pain condition. Please see her Q&A here: How I live with daily CHRONIC PAIN (Q&A)

 

Please share this page as far as you can - together we can raise awareness and funds for a charity that needs our help and, by connecting people on Rare Disease Day, together we are stronger. 

 

 

THE AMAZING WORK TNA UK DO

The Trigeminal Neuralgia Assocation (TNA UK) offer support, information and encouragement to those that suffer from this incredibly painful and currently incurable disease.

Along with support, the charity want to raise awareness of this disease within the medical community as well as the general public at large.

As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work.  They receive no funding whatsoever from central Government or corporate organisations.

HOW YOU CAN HELP

By taking on the Hackney Half Marathon, Kate wants to raise £1000 for the amazing work TNA UK does for Melissa and those that live with Trigeminal Neuralgia daily. All donations, however small, make such a difference to this charity and those it helps.

Here is how you can help Kate raise awareness of TNA UK





LIVING WITH TRIGEMINAL NEURALGIA


** Trigger Warning for all content below: Mentions of suicide, surgery and chronic pain. **

TNA UK 
BEAUTYME PODCAST

MSNBC - Living With The World's Most Painful Disease
KELSEY DARRAGH - HOW I LIVE DAILY WITH CHRONIC PAIN
JOE ROGAN INTERVIEW WITH
TRAVIS BARKER

Keep checking back for updates. For support with TN, please reach out to TNA UK.

Trigeminal Neuralgia is rare but too many of us have it. This debilitating disease affects me and so many others every single day. Kate raising money for TN awareness and research into finding a cure… I’m not sure I’ll ever have the words for how much this act of love means to me.

- Melissa Geczy

HOW YOU CAN HELP


Awareness of Trigeminal Neuralgia is crucial in helping TNA UK help support people with the disease. You can help in the following ways:

Share this page on 28th February 2021 using the hashtag #RareDiseaseDay2021

KATE RUNS THE HACKNEY HALF FOR TNA UK!


On Sunday 26th September 2021, Kate is running the Hackney Half Marathon for Trigeminal Neuralgia Association UK

all donations through justgiving

Supporting:

Event:

KATE'S STORY

**TW: Mentions of suicide, pain and images of surgery scars. **

Hello everyone,

February 28th is Rare Disease Day, an event first held in 2008 to raise awareness amongst the public and policy decision-makers about rare diseases across the globe. 

And it’s the ideal day on which to raise awareness of Trigeminal Neuralgia (TN), an incredibly painful - and often debilitating - disease which affects the trigeminal nerve between the face and the brain.  It is often described as 'the worst pain known to mankind'. (TNA UK, 2018). 

My most excellent friend Melissa Geczy developed TN three years ago, and I am running the Hackney Half Marathon on Sunday, 26th September to raise funds for Trigeminal Neuralgia Association UK - a charity that does vital work to raise awareness of this condition and to continue to offer support to people recently diagnosed with this disease. This service was helpful and reassuring to Melissa when she first received her diagnosis. The officers of the charity (many of whom are themselves sufferers of the condition) give their time voluntarily. The charity receives no Government or corporate funding but relies mostly on donations. 

Trigeminal Neuralgia’s symptoms include episodes of severe, shooting or jabbing pain that may feel like an electric shock, episodes of several attacks lasting days, weeks, months or longer. It’s even, sadly, come to be known as ‘The Suicide Disease’ due to the unbearable pain it causes. If you’d like to find out more, Amanda Young (a 39-year-old fitness instructor in Brooklyn living with Trigeminal Neuralgia) describes what it is like to live with TN in this short film from MSNBC: Living With The World's Most Painful Disease. (hyperlink in the title). 

Melissa has also spoken eloquently and openly about her experiences with TN, including on the BeautyMe podcast with Cherisse Kenion, so please do give her episode a listen here to find out why this is such an important and special cause. 

At the moment, there is no cure for the disease. Some treatments such as brain surgery and other percutaneous procedures can be undertaken, but they have limited effectiveness as a permanent cure. One such operation is microvascular decompression surgery (MVD), which involves opening the skull and exposing the nerve at the base of the brainstem. A tiny sponge is inserted between the compressing vessel and the nerve. This sponge isolates the nerve from the pulsating effect and pressure of the blood vessel. Melissa underwent MVD surgery in August 2019. Many TN sufferers get relief from this, but this was not the case with Melissa. Trigeminal Neuralgia Association UK is working to raise awareness and fund further research into finding a cure for this excruciating disease. 

For more information about Trigeminal Neuralgia, please visit: Trigeminal Neuralgia Association UK’s website: https://www.tna.org.uk/ 

Kelsey Darragh also lives with TN and explains what her life is like with a chronic pain condition. Please see her Q&A here: How I live with daily CHRONIC PAIN (Q&A)

 

Please share this page as far as you can - together we can raise awareness and funds for a charity that needs our help and, by connecting people on Rare Disease Day, together we are stronger. 

 

 

THE AMAZING WORK TNA UK DO

The Trigeminal Neuralgia Assocation (TNA UK) offer support, information and encouragement to those that suffer from this incredibly painful and currently incurable disease.

Along with support, the charity want to raise awareness of this disease within the medical community as well as the general public at large.

As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work.  They receive no funding whatsoever from central Government or corporate organisations.

HOW YOU CAN HELP

By taking on the Hackney Half Marathon, Kate wants to raise £1000 for the amazing work TNA UK does for Melissa and those that live with Trigeminal Neuralgia daily. All donations, however small, make such a difference to this charity and those it helps.

Here is how you can help Kate raise awareness of TNA UK





LIVING WITH TRIGEMINAL NEURALGIA


** Trigger Warning for all content below: Mentions of suicide, surgery and chronic pain. **

TNA UK 
BEAUTYME PODCAST

MSNBC - Living With The World's Most Painful Disease
KELSEY DARRAGH - HOW I LIVE DAILY WITH CHRONIC PAIN
JOE ROGAN INTERVIEW WITH
TRAVIS BARKER

Keep checking back for updates. For support with TN, please reach out to TNA UK.

Trigeminal Neuralgia is rare but too many of us have it. This debilitating disease affects me and so many others every single day. Kate raising money for TN awareness and research into finding a cure… I’m not sure I’ll ever have the words for how much this act of love means to me.

- Melissa Geczy

HOW YOU CAN HELP


Awareness of Trigeminal Neuralgia is crucial in helping TNA UK help support people with the disease. You can help in the following ways:

Share this page on 28th February 2021 using the hashtag #RareDiseaseDay2021

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